She is starting to have "mini" seizures. I made that name up. We call them mini because she starts to have the onset of a seizure, but it goes away. I'm not sure what is worse though an actual seizure or a mini seizure. I say this because with an actual seizure she goes completely unconscious during the seizure. She doesn't really have any memory of it. With a "mini" seizure she has the same initial reaction at the start of a seizure. If sleeping she wakes up abruptly, scampers to me, grabs her stomach, and has like a panic attack. She panics crying,"seizure, seizure." You can't calm her. She panics for about 30 seconds. It's so sad. Her heart rate races just like it does in a full seizure. I'm sure medically these are better than a full blown seizure, but I think they are worse for her because she's aware the whole time. I read once a post on an epilepsy thread. It was an adult that was explaining the aura feeling in the stomach that happens right before a seizure. She said that it is the most frightening thing, so much so that they can't describe the fear. She said when this happens to her, her spouse would reassure and promise that he would let nothing bad happen. She said that it didn't help because no one can understand the fear that takes place. She said it's almost like being attacked by evil spirits. She said it's a strange sensation that happens in the stomach and works it's way up to your head. I feel so bad for Jaden because she acts just like that lady described. She starts by grabbing her stomach yelling tummy seizure. She is scared to death. She grabs on to you. It's like she can't hug you tight enough and she's panicking the whole time.
So that is the latest. She is having a mini seizure almost every night. Some nights 2 or 3 times. Usually right after she falls asleep. She has had a couple in the evenings before bed.
