Wednesday, July 22, 2009

2 seizures this morning so far:

8:15 a.m.
10:40 a.m.

She started physical therapy last week. I've noticed HUGE improvements on her behavior. She has been so normal acting and so sweet lately. However, it seems that the seizure numbers have increased since she's had cranial therapy. I guess we'll watch it out see how it goes. I'm really happy with behavior improvements. Cranial work is used a lot on kids with ADD and ADHD. In fact, one of the school teachers was telling me about it because they had a student with ADHD that had huge improvements with it. 

Anyway, it's always a little discouraging with epilepsy because there are never any answers. It doesn't matter who you see. Aside from the medical definition of what a seizure is and what takes place in the brain when there is a seizure, nobody has any answers. So we will just keep trying new things like we've always done.

Tuesday, July 21, 2009

Seizure

Jaden had a seizure this morning at 10:40. She has started physical therapy and is receiving cranial treatments. We'll see how it goes. I'll right more about that later.

Saturday, July 18, 2009

Seizure

Jaden had two seizures this morning. 

9:30 am
10:30 am

This was unusual to the normal routine. Usually she has them during the night. And it's been a long time since she's had more than one in a day. The first one was long and intense. The second was more mild.

Wednesday, July 15, 2009

Seizure Updates

 This was my seizure list that I had going. Now with the blog I will have a place to post seizures. There were more than what is listed because I know I didn't always add them to my list. I didn't always add the time either sometimes I just put the date.

May 4  7:00 am
May 7  7:00 am
May 8  7:00 am
May 10  4:00 am & 6 am
May 11  2:00 am & 6 am
May 12  4:00 am & 7 am
May 13  2:00 am, 4 am, 6 am
May 14  2, 5:30 am 
May 17
May 18
May 19
May 24
May 25
May 26
May 27
May 29
May 30
May 31  started Epi-Still
June 12
June 13 
June 30
July 11

New Blog for Jaden

I've decided to start a blog just for Jaden. I really feel the need to document so much more of her life. I think it will lead to some answers and solutions while raising her. I think I am getting closer to having more answers. Well, I say more answers, but what this really means is the recognition of more problems. After reading for several hours and looking at Occupational Therapy websites, I have determined that Jaden has a Sensory Processing Disorder. She has hyposensitivity. It's really, REALLY hard to deal with her on a daily basis. She is SO much work. As she gets older we recognize more that she is not "normal". She is normal in the sense that she academically is right on task. Socially, she is way outgoing and even quite humorous. However, she has the maturity of a rambunctious 2 or 3 year old. She seriously acts like she's about 2 or 3 and a naughty one at that. I'm realizing this as I recognize that I trust Sam more and watch him less. He is more reliable than she is. There are so many times when I want so badly to blog about how down I am about her, but I usually don't. I think by starting a blog for her, I will be able to express myself more too and I will have a record of the ups and downs. She's on a waiting list to see a Physical Therapist here that does Occupational Therapy.


Here's a checklist for hyposensitivity:
(They said that you only need a few from list to qualify)

(The ones that I put in BOLD apply to Jaden.)


1. Hyposensitivity To Touch (Under-Responsive):

__ may crave touch, needs to touch everything and everyone

__ is not aware of being touched/bumped unless done with extreme force or intensity

__ is not bothered by injuries, like cuts and bruises, and shows no distress with shots (may even say they love getting shots!) When she was in the hospital she would rip out her IV's just so the IV lady would come back and visit her. It didn't bother her at all to have the IV put in. We've always noticed that she lacks emotion and pain. She never cries and she never recognizes pain.

__ may not be aware that hands or face are dirty or feel his/her nose running

__ may be self-abusive; pinching, biting, or banging his own head

__ mouths objects excessively

__ frequently hurts other children or pets while playing

__ repeatedly touches surfaces or objects that are soothing (i.e., blanket)

__ seeks out surfaces and textures that provide strong tactile feedback

__ thoroughly enjoys and seeks out messy play

__ craves vibrating or strong sensory input

__ has a preference and craving for excessively spicy, sweet, sour, or salty foods


2. Hyposensitivity To Movement (Under-Responsive):

__ in constant motion, can't seem to sit still

__ craves fast, spinning, and/or intense movement experiences

__ loves being tossed in the air

__ could spin for hours and never appear to be dizzy

__ loves the fast, intense, and/or scary rides at amusement parks. When she was 4 years old she went on the Tower of Terror at Disneyland and Space Mountain was her favorite ride.

__ always jumping on furniture, trampolines, spinning in a swivel chair, or getting into upside down positions

__ loves to swing as high as possible and for long periods of time

__ is a "thrill-seeker"; dangerous at times


__ always running, jumping, hopping etc. instead of walking

__ rocks body, shakes leg, or head while sitting

__ likes sudden or quick movements, such as, going over a big bump in the car or on a bike

3. Hyposensitivity To Oral Input (Under-Registers)

__ may lick, taste, or chew on inedible objects

__ prefers foods with intense flavor; i.e., excessively spicy, sweet, sour, or salty

__ excessive drooling past the teething stage

__ frequently chews on hair, shirt, or fingers

__ constantly putting objects in mouth past the toddler years

__ acts as if all foods taste the same

__ can never get enough condiments or seasonings on his/her food

__ loves vibrating toothbrushes and even trips to the dentist


4. Hyposensitivity To Visual Input (Under-Responsive Or Difficulty With Tracking, Discrimination, Or Perception):

__ has difficulty telling the difference between similar printed letters or figures; i.e., p & q, b & d, + and x, or square and rectangle

__ has a hard time seeing the "big picture"; i.e., focuses on the details or patterns within the picture

__ has difficulty locating items among other items; i.e., papers on a desk, clothes in a drawer, items on a grocery shelf, or toys in a bin/toy box

__ often loses place when copying from a book or the chalkboard

__ difficulty controlling eye movement to track and follow moving objects

__ has difficulty telling the difference between different colors, shapes, and sizes

__ often loses his/her place while reading or doing math problems

__ makes reversals in words or letters when copying, or reads words backwards; i.e., "was" for "saw" and "no" for "on" after first grade

__ complains about "seeing double"

__ difficulty finding differences in pictures, words, symbols, or objects

__ difficulty with consistent spacing and size of letters during writing and/or lining up numbers in math problems

__ difficulty with jigsaw puzzles, copying shapes, and/or cutting/tracing along a line

__ tends to write at a slant (up or down hill) on a page

__ confuses left and right

__ fatigues easily with schoolwork

__ difficulty judging spatial relationships in the environment; i.e., bumps into objects/people or missteps on curbs and stairs